MEMBERS

Maurizio Scarpa,
President
Regional Coordinating Center for Rare Diseases
Udine University Hospital
Udine, Italy

and
University of Padua, IT

Contact Me

Scientific Committee

President:

Prof: Maurizio Scarpa

Scientific Executive Committee:

• Kim Angel, International MPS Network, Vancouver, British Columbia, Canada
• Britta Engelhardt, King’s College London, London, UK
• Timothy Cox, Administrative Council, University of Cambridge, UK
• Reinhard Gabatuler, King’s College London, London, UK
• Lester Drewes, University of Minnesota Medical School Duluth
• Roberto Giugliani, UFRGS, HCPA, DASA, INAGEMP and CASA DOS RAROS, Porto Alegre, BR
• Frances Platt, University of Oxford, UK
• Robert Thorne, University of Minnesota-Twin Cities, Minneapolis, MN
• Timothy M. Cox, University of Cambridge, UK
• Giovanni Tosi, University of Modena, Modena IT

Patient Board

• Kim Angel, International MPS Network, Vancouver, British Columbia, Canada
• Tanya Collins Histead, Gauchers Association Ltd, UK
• Bill Owen, Patient Board Niemann-Pick Disease Group, UKAA