News

The Brains for Brain Foundation is pleased to announce the upcoming 2nd “Drug Delivery to the Brain” Keystone Symposium, scheduled for February 17–20, 2025, at…

We are excited to announce that this page will feature all the videos and pictures taken by participants during the B4B Annual Workshop and Special…

We are excited to announce that videos and pictures from the B4B Annual Workshop and Special Celebration, held at Sidney Sussex College, Cambridge, from September…

    Dear Friends of B4B, We are excited to announce that we have finalised the program for this special meeting that is taking place…

  In accordance with the relevant law (124/2017) of the Italian civil code, we hereby publish the information regarding the contributions we received from Italian…

Dear Friends of B4B, It has been almost a year since we bid farewell to our dear friend and valued member, Dr. David Begley, the…

The great unforgettable Prof. David Begley PhD passed away last July 6, 2023. Though his physical presence is no longer with us, his unwavering spirit…

  The Brains for Brain Foundation is organising its annual workshop that will be held at Sidney Sussex College in Cambridge, UK, on 9-11 September…

It is with profound sadness that we announce the passing of our dear friend and esteemed colleague, Professor David Begley, PhD, on the evening of…

  In accordance with the relevant law (124/2017) of the Italian civil code, we hereby publish the information regarding the contributions we received from Italian…

  In accordance with the relevant law (124/2017) of the Italian civil code, we hereby publish the information regarding the contributions we received from Italian…

  In accordance with the relevant law (124/2017) of the Italian civil code, we hereby publish the information regarding the contributions we received from Italian…

Dear All, due to the evolving public health risk associated with the outbreak of the Coronavirus, the B4B workshop planned for next month, 5-7 November, 2020 is cancelled.  …

  In accordance with the relevant law (124/2017) of the Italian civil code, we hereby publish the information regarding the contributions we received from Italian…

Dear All, as you know, due to the evolving public health risk associated with the outbreak of the Coronavirus, the B4B workshop planned for  6-8 March, 2020 was…

The Brains for Brain Foundation, in collaboration with the Clinical Research Center in Salzburg, and as part of the capacity building and training activities of…

Dear All, due to the evolving public health risk associated with the outbreak of the Coronavirus, the B4B workshop planned for this month, 6-8 March, 2020 is cancelled.  …

We are pleased to announce the forthcoming 14th meeting of the Brains for Brain Foundation (B4B). B4B is an International Task Force (chaired by Prof Maurizio…

Today is Rare Disease Day: it is time to ‘show your rare’ Wednesday 28 February marks the twelth edition of the international Rare Disease Day…

  In accordance with the relevant law (124/2017) of the Italian civil code, we hereby publish the information regarding the contributions we received from Italian…

The Brains for Brain Foundation, in collaboration with the Clinical Research Center in Salzburg and the Medizinisches Simulationszentrum Salzburg, and as part of the capacity…

Prof Maurizio Scarpa (IT) and Dr David Begley (UK)  have officially opened yesterday the 13th meeting of the Brains for Brain Foundation (B4B) that is…

We are pleased to announce the forthcoming 13th meeting of the Brains for Brain Foundation (B4B). B4B is an International Task Force (chaired by Prof Maurizio…

The members of the “conect4children” (c4c) initiative today announced the start of a large collaborative paediatric network that will facilitate the development of new drugs…

Today is Rare Disease Day: it is time to ‘show your rare’ Wednesday 28 February marks the eleventh edition of the international Rare Disease Day…

  Brains for Brain is pleased to inform you that the Annual Symposium of the Society for the Study of Inborn Errors of Metabolism (SSIEM) will be…

We are pleased to announce the forthcoming 12th meeting of the Brains for Brain Foundation (B4B) . B4B is an International Task Force (chaired by Prof Maurizio…

French and Canadian scientists make discovery that could affect diagnosis, genetic counselling and therapeutic approaches in patients with a rare conditionMontreal – Rare hereditary recessive…

We were deeply saddened to hear that the brave and inspiring Christine Lavery passed away on Tuesday 19th December 2017 in hospital surrounded by her…

The 20th anniversary edition of the EHFG took place 4-6 October 2017 in Bad Hofgastein, Austria, gathering over 500 participants. The EHFG is the most…

Organized by the Italian Ministry of Health, the ERN Info Day’ was held in Rome (Italy) on October 16th, 2017.This meeting was aimed to create…

  Following the call for applications for Rare diseases (3rd Public Health Programme) in support of the setup of new registries, the Brains for Brain Foundation…

The Brains for Brain Foundation, in collaboration with the Centre for Rare Diseases at the Helios Horst Schmidt Kliniken in Wiesbaden & the Clinical Research…

 Brains for Brain Foundation is proud to announce that  the Consortium Assembly of the International Rare Diseases Research Consortium (IRDiRC) has voted to appoint Maurizio…

Brains for Brain is glad to share the new vision and goals of the International Rare Diseases Research Consortium (IRDiRC). IRDiRC teams up researchers and organisations…

Brussels June 21st  2017_ MetaBERN is delighted to announce the appointment of its Coordinator, Prof Maurizio Scarpa, as the first Chairman of the European Reference…

 24 European Reference Networks (ERNs) were formally launched on 9 March 2017. Representatives from the networks and Member States, along with patients and policymakers, gathered…

THE BRAINS FOR BRAIN ONLUS FOUNDATION PROMOTES THE BRAIN AWARENESS WEEK  March 13-19, 2017 Every March, Brain Awareness Week (BAW) unites the efforts of partner…

              The Third Conference on European Reference Networks took place in Vilnius at the Lithuanian Exhibition and Congress Centre LITEXPO…

          5 pm. 10 March 2017_Helios Dr. Horst Schmidt Kliniken (HSK)-Center for Rare Diseases, Department of Pediatric and Adolescent Medicine in…

We are pleased to announce the forthcoming 11th meeting of the Brains for Brain Foundation (B4B) . B4B is an International Task Force(chaired by Prof Maurizio Scarpa)…

ERNs are unique and innovative cross-border cooperation platforms between specialists for the diagnosis and treatment of rare or low prevalence complex diseases. Speaking to doctors,…

Today is Rare Disease Day 2017! Today, with events taking place in over 90 countries all around the world, we hope to raise more awareness than…

The informative synopsis about the European Reference Network for Hereditary Metabolic Diseases (MetabERN) has been developed with the aim to make different stakeholders aware about the project…

On 15th December the Board of Member States of European Reference Networks (ERNs) voted to approve all 23 ERN proposals submitted under the first wave…

The NCL Foundation aims to help find a cure for the most prevalent form of childhood dementia caused by mutations in the CLN3 gene. Together with the existing…

On June 21st 2016, the Helios Dr. Horst  Schmidt Kliniken has submitted a proposal to the European Commission aimed at establishing the European Reference Network…

10th B4B Workshop and InNerMeD 3rd Open Conference Brains for Brain Foundation (B4B), the organisation leading the “Inherited NeuroMetabolic Disease Information Network” (InNerMeD-I-Network) project, is…

THE BRAINS FOR BRAIN ONLUS FOUNDATION PROMOTES THE BRAIN AWARENESS WEEK March 14-20, 2016 Every March, Brain Awareness Week (BAW) unites the efforts of partner…

  B4B IS A FRIEND OF RARE DISEASE DAY! Celebrated on the last day of February–the rarest day on the calendar–this is the one day every…